Background
The Network Patient and Public Voice (PPV) Group was established in May
2020 at the height of the pandemic. They quickly established themselves as a
group of committed users of the service with a combination of people with
lived experience. This included family members with children, adults with
congenital heart disease and people representing the charity sector.
One of the first concerns raised was about communication and how this was
often at the heart of problems that patients and families experienced. As
a result of this a project was initiated to try and establish what patients and
families were experiencing. A number of focus groups were held with families
and adult patients to listen to their shared experiences. These focus groups
were transcribed and the information used to create two patient experience
questionnaires. One for paediatric cardiac patients and their families and one
for adult congenital heart disease patients.
TAKE THE SURVEY
CLICK HERE FOR QR CODE
GET INVOLVED
How can I provide feedback?
Everybody’s experience is important. Please click here or scan the QR code to provide feedback about the care you, your family or your child have received. The survey takes about 15 – 20 minutes to fill in. However, you don’t need to answer every question. If you say “no” to a section it will jump to the next so you can choose which bit of the service to give feedback about.
The results of these surveys are used to help improve the experience and care that you receive. They really do make a difference. You can feedback as many times as you like as the survey is always live and open.
Patient Experience Forum
We use the feedback from the surveys to improve patient care and experience throughout our Network. We have a Patient Experience Forum that meets once a year to review all of the data from the past 12 months. This gives enough time for as many surveys as possible to be completed and makes the results more meaningful. The Patient Experience Forum is attended by Network staff, doctors and nurses and any other relevant staff, managers, psychologists and includes our patient representatives. At this meeting they will agree the top 3 priorities for the Network to work on to help improve the experiences of patients and their families.
Meeting Report June 2024
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Click above to access the meeting report from June 2024