About
Mission Statement
To ensure that the patient and public voice is at the centre of healthcare decisions for children with heart problems and adults with congenital heart disease.
We believe that your voice matters. Whether you are a patient, family member, or part of the public, your experiences and ideas help us improve the care we provide. We want to hear from you about how we can make our services better. You might have suggestions on how to improve care, facilities, or communication, and we value your feedback about how we can improve.
By getting involved, you can:
- Share your experiences with healthcare services.
- Help shape future care and support for patients and families.
- Work with doctors, nurses, managers and commissioners of NHS services to improve patient care.
The network covers the following areas:
- Lancashire and South Cumbria
- Merseyside and Cheshire
- Greater Manchester
- North Wales
- The Isle of Man
Have a look at the hospitals in our network by clicking here
Everyone is welcome to take part. Your insights help us make sure our services meet the needs of all patients, both young and old.
Together, we can create better heart care for everyone.
When does the PPV Group meet?
What have we achieved?
Helped to develop a patient experience survey to help people speak up about their care and improve services for children with heart problems and adults with congenital heart disease.
Hosted patient information days for patients and their families. Bringing people together to meet clinical staff and local and national charities, as well as hearing useful talks about patients living with their heart problems and the latest advances in treatments
Worked with the Somerville Heart Foundation to provide an activity day for young people with heart problems. This involved a day of outdoor activities and a chance to meet staff. Young Peoples Activity Day
Developed a ‘Learning Disability Forum’ including patients with learning disabilities and autism, their family members and local charities. As well as leading on the development of a recent Learning Disability Open Day, they have developed a checklist of ‘reasonable adjustments’. The LD Forum have been advising hospitals how to improve the experience of people with learning disabilities. The Forum have also provided bags of ‘distraction’ toys to help entertain children and adults awaiting hospital treatment for heart conditions.
Host regular online ‘drop in’ sessions for patients, families and carers to meet their PPV representatives and raise any queries or concerns.
Keeping up to date
Click here to keep up to date with our news and events.
Introducing your PPV Representatives
If you are interested in knowing more about the PPV Group or would like to consider joining them. Please fill in the form below and click ‘send’.
Your PPV Representatives would also love to hear from you. Do you want to raise an issue with them? Do you have something to celebrate? Perhaps your care has been excellent, and you want to let them know? Do you have any ideas that could improve things for other patients? If you don’t want to commit to joining the PPV Group but would like to get in touch. Please use the form below to contact them..
About
Contacting the PPV Group
TAKE THE SURVEY
CLICK HERE FOR QR CODE
Patient Survey
Everybody’s experience is important. Please click here or scan the QR code to provide feedback about the care you, your family or your child have received. The results of these surveys are used to help improve the experience and care that you receive. They really do make a difference. You can feedback as many times as you like as the survey is always live and open.
(PPV Video)
Interested in joining the Network Patient & Public Voice Group? Please click here to fill in our form or scan the QR code above.