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Patient Information

Contact Info

North West, North Wales & The Isle of Man Congenital Heart Disease Network, Alder Hey Children’s NHS Foundation Trust Email:

northwestchdnetwork@alderhey.nhs.uk

Babies and Children

  • The purpose of this information
    Documents for Babies and Children
  • Who this information is for
  • Date Published

Kawasaki Guideline

Clinical Guideline produced by experts in the NW detailing how to diagnose and treat Kawasaki Disease using the most up to date evidence available.

Paediatric Cardiac Outpatient Referral Guidelines

This document describes the outpatient referral guidelines for babies and children with a suspected diagnosis of cardiac disease. It is aimed at GP’s and Paediatricians to help guide them to the most appropriate referral pathway.

Paediatric Cardiac MDT SOP

This document describes how the supra-regional Paediatric Multi-Disciplinary Team (MDT) operates and includes practical guidance on how to submit a case for discussion.

Paediatric Cardiac MDT Terms of Reference

Terms of reference to support the Cardiac MDT meeting.

Safe Waiting List Management for Paediatric Cardiac Surgery and Intervention

This document describes the process of what to do if a baby or child’s condition changes whilst they are on the waiting list for surgery or intervention at Alder Hey Children’s Hospital. It is to be used in conjunction with the clinical Urgency Update Form.

Paediatric Cardiac Catheter & Intervention SOP

This document describes the process for listing, undertaking, reporting and communicating the results of all paediatric diagnostic and interventional catheters performed at Alder Hey Children’s Hospital.

Specialist Pre-Operative Risk Assessment for Non-Cardiac Surgery

This document outlines how to access specialist anaesthetic advice when a baby or a child with an underlying cardiac condition requires non-cardiac surgery.

Clinical Urgency Update Form

Please use this form to alert the team at Alder Hey Children’s Hospital that a baby or child who is on the waiting list for surgery or intervention needs to be reviewed because their clinical condition has changed. Please email this form to ahc-tr.cardiology@nhs.net

Open Access Letter

This letter is useful in children with heart defects where there is a possibility that they may require a more timely review at their local hospital. The local paediatrician with expertise in cardiology (PEC) will be responsible for agreeing this process for named patients only. Please be aware that not all Level 3 services can support ‘open access’ and urgent review may have to be sought via the GP or emergency services if appropriate.

Referral Form for Urgent Advice

This form is to be used when urgent advice from our on-call teams is required. This form should also be used for patients requiring transfer to Alder Hey Children’s Hospital ( Level 1) or Royal Manchester Children’s Hospital (Level 2).
Level 1
Send to ahc-tr.cardreg@nhs.net before bleeping the on-call registrar on 369 via the hospital switchboard 0151 228 4811
Level 2
Send to mft.rmchcard@nhs.net before bleeping the on-call registrar via the hospital switch board 0161 276 1234

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